Ask before its too late. Some of the examples are noteworthy:
When you have a baby with a genetic disorder, they send you to see a geneticist. Sort of like a fortune-teller. I really only had one question left for him: Do people with Down syndrome ever have curly hair? In our house, hair is a big deal. Specifically, hair that curls. For weeks afterward, my husband Ray and I watched her head carefully for signs of curls.
Perhaps Ray and I are so obsessed with hair because both of us had transformations when we learned to let our curly hair be curly. For me that happened my junior year in college, when I spent a semester in London and got a spiral perm—going to the other extreme from my previous hairdo, which had required hours with the blow-dryer, round brush, and iron.
Okay, so with the perm I looked like Dee Snyder from the heavy metal band Twisted Sister, but that was stylish in the late s, and finally, I felt good about myself. I dated cute boys all summer. No way am I telling you anything.
No, just an entire bottle of No-More-Tangles. She loved to shake her curls. She knew they made her special. But what about Sophie—so tiny in her carrier, with straight black hair and a feeding tube up her nose, chromosomally challenged and days away from open-heart surgery?
Would her hair ever curl? From the look on his face, neither could he, a sweet older man with a booming practice and a packed schedule.
In the time it took us to get in to see him, Ray had done his own homework on the topic of Down syndrome. Before the doctor joined us in the exam room, we met with a genetics counselor who gave us some history.
After Sophie was born and we got her diagnosis, Ray and I took very different approaches, which is weird, since he and I are both journalists, each of us in the habit of soaking everyone and everything for information on any given topic.
Instead I focused on the day to day. I decided I could only live with my baby and learn to love her and get her what she needed. Echocardiograms, rows of pill bottles, a mini-hospital set up in the nursery. Scariest of all, a few days after this appointment with the geneticist, she was scheduled for open-heart surgery.
I survived by taking deep breaths and focusing only on the immediate. I wanted to know about her hair. The day before Sophie was born, I had an ultrasound.
And so was Sophie when she arrived, right down to her full head of straight hair. Selfishly, instinctively, I wanted her to be just like us. And so, I wanted her to have curls.Published by Pendragon, Easingwold, YO61 3YS. Number 1 (January) GWR railcar No.W19W enters Ledbury station on service from Gloucester in May Choose your favorite fire paintings from millions of available designs.
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Fay Jones: Painted Fictions Fay Jones: Painted Fictions Hallie Ford Museum of Art at Willamette University November 18, – January 20, Teachers Guide This guide is to help teachers prepare students for a field trip to the exhibition, Fay Jones: Painted Fictions and offer ideas for leading self-guided groups through the galleries.
Contemporary art gallery established in in Portland, OR. Specializing in Pacific Northwest artists. Representing Michael Brophy, Fay Jones, Lucinda Parker, Anne Siems, Samantha Wall, and many others.
By Rachel Pieh Jones. We are an American family living in Djibouti and my kids attend a French school. Their first days of preschool were the first days they spent entirely and only surrounded by .
Find the latest shows, biography, and artworks for sale by Fay Jones.